SOFT UK (Support Organisation For Trisomy 13/18)
SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins.
They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders.
Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families.
It provides up-to-date information and non-judgemental support.
The information is evidence-based and prepared in collaboration with professional advisers.
It is always given to complement the advice of the clinicians who work with individual families.